Archive for the ‘fundraising’ Category

Helen has organised a raffle with prizes donated by UK Channel Five.  Tickets can be purchased online and proceeds go to Action for ME

“Ellephantastic Draw in aid of Action for M.E.

Draw date: 3rd July 2010
Deadline to return/buy tickets: 3rd July 2010 2pm 
1st Prize: Red England T-shirt signed by Ian Wright
2nd Prize: White England T-shirt signed by Ian Wright
3rd Prize: Justin Lee Collins book “Good Times” signed by Justin Lee Collins
Plus other prizes including T-shirts (2) signed by The Gadget Show presenters & a set of signed pictures from The Gadget Show presenters
(All prizes have been donated by Channel Five) 
Tickets cost just £1.00 each”

Find out more  at Ellephantastic Draw in aid of Action for M.E.


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The Reading Area ME Support Group are seeking volunteers to help at aDebenhams promotion day in Slough during M.E. Week.

There will be an information stand along with fundraising for Action for ME.

image by ArtemFinland on flickr

image by ArtemFinland on flickr

Debenhams will be displaying Action for M.E. collection tins on all their tills and be selling Action for M.E.. promotional products. Alongside this there will be local press advertisements and a radio competition on Time 106.6 and an Action for M.E. display inside the shopping centre.

All this will enable us to raise more funds, and increase awareness of both us as a charity and also for the illness as a whole.

We are asking if you could please help out at this event – either on the stall, or to collect at the door. Collections will occur 13th-16th May and a presence in the shopping centre will be also for these dates. We will need at least 6 people to be present at each time (2 people for each door, plus 2 people at the stand). (Timings TBC). Chairs will be available so that you can sit down.

If any of you at all could please help with this event, it would be very much appreciated so that we can make this fundraising and awareness activity, a success.

Please could any one who would like to help out please contact Karen sloughmegroup@yahoo.co.uk

You will need to be present between 11am-3pm.

Read more on their blog post

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An awareness and fundraising walk is being held on May 23 2009 by Patient Alliance for Neuroendocrineimmune Disorders Organization for Research & Advocacy or P.A.N.D.O.R.A.

Their motto “We were built on Hope. Strong on Advocacy. Finding a Cure through Research.”

walkathonwebsquare03232009Saturday, May 23, 2009, 7:30 AM
CB Smith Park
900 N. Flamingo Rd.
Pembroke Pines, FL 33028

Check -in
: 7:30 to 8:30 am
Walk begins: 9:00 am sharp

Click here to register

Walk with P.A.N.D.O.R.A to benefit children, men and women stricken with Neuroendocrineimmune Disorders such as: chronic fatigue syndrome/ME (CFS/ME), fibromyalgia (FM), Gulf War illnesses (GWI), multiple chemical sensitivities (MCS) or environmental illnesses (EI) and chronic Lyme disease (CLD).

Your participation supports research that can lead to scientific breakthroughs, physician training, scholarships for the chronically ill, quality of life outreach programs and advocacy initiatives.

There is a 5k and a 1 mile walk on the day and the registration fee includes lunch. This fundraising event will go towards PANDORA‘s key missions.

P.A.N.D.O.R.A. Inc. is founded on the following principles:
To be one strong voice for many© . . .

  • Creating and raising awareness
  • Advocating for quality of life Issues
  • Providing support and educational resources
  • Establishing partnerships in our worldwide community
  • Supporting scientific research
  • Encouraging creation of empowerment groups
  • Organizing educational conferences

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    The Bourne and South Lincolnshire ME Support Group will be running a stall for ME Awareness and to raise funds.

    balloons house of sims flickr

    image by house of sims on flickr

    Thursday, May 14

    Bourne Market, South Lincolnshire

    Bourne and South Lincolnshire ME Support Group stall to raise ME profile during ME Awareness Week.

    Donations of bric-a-brac and books most welcome, as well as offer from volunteers to help during the day. Please email Jan Limback janlimback@hotmail.com,

    The group produces a newsletter and runs a telephone helpline as their members are scattered around the region and it can be difficult for them to attend regular meetings. Membership is free.

    We use a little of the money we raise to fund the Helpline and the Newsletter, but most of it is sent to support research. This is vital in order to find what causes the illness so that effective treatment can be achieved.

    There is some very promising research going on at the moment into gene expression, which it is hoped will lead to a definitive test for the illness and eventually to better methods of treatment, but it is not supported by the Government and has to look to groups such as ours for funding.

    Source Rutnet

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    The Dorset ME Group has a fundraiser and a social event planned for May 2009.

    pink gingiber flcikrSunday, May 10, 2-5pm

    Home of Mr and Mrs Millington, Heron’s Mead, East Burton Road, East Burton, Wool, Wareham, Dorset,

    Dorset ME Group fundraiser. Gardens open. Teas, plants, produce and books for sale. Bring your friends and family for a lovely afternoon out. Admission £2.50. Carers free

    Then later in the month a social event with tractor driven trailer rides.

    Tuesday, May 19, 2.30pm

    National Trust property at Kingston Lacey, near Wimborne, Dorset

    Dorset ME Group social event.

    Tractor-driven trailer rides round the grounds. Numbers limited to 14 and wheelchairs, but not mobility scooters, can be accommodated. The trailer has a canopy cover but no protection at the sides. The National Trust charges £4 a person, with one carer per person going free. Booking essential. Please contact email maggie1963@btinternet.com

    Dorset ME Group have link groups in Weymouth, Dorchester, Bridport, N.Dorset, Wareham, Purbeck, Christchurch, Bournemouth, Poole & Wimborne. They provide support for ME sufferers in the region. They organiseregular meetings, a twice yearly newsletter and an Annual Medical Lecture, open to all interested in CFS/ME.

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    On 9th May 2009 there will be a Gift Auction in aid of the New Jersey Chronic Fatigue Syndrome Association (NJCFSA).

    The group is run by persons with CFS and their famillies to support persons with CFS.


    image by chris.pepline on flickr

    The 2009 Gift Auction to benefit the NJCFSA

    Saturday May 9, 2009

    at VFW Post 2639, 1515 Corlies Avenue Neptune, NJ.

    Doors open at 6:30 PM. * Drawing: 7:30 PM

    Admission: $7.00 in advance, $10 at the door

    *Adults only*

    Admission includes 1 sheet of regular-basket tickets, coffee, tea and cookies.

    Additional tickets and larger-basket tickets available at an additional cost

    All proceeds go to NJCFSA

    pinsmallThe NJCFSA also sells blue ribbon enamel pins/badges at $3.00 each plus $2.50 shipping and handling.

    Plus they have a poster that can used for campaigning.

    Please see the NJCFSA web site for more details.

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    walk-of-fameThe second Walk of FAME for the National Fibromyalgia Association (NFA) will be on Tuesday 12 May.

    Hundreds of walks will happen in local communities nationally and worldwide. There will even be a virtual walk to join.

    On or around May 12, teams of three or more, patients, family and friends —wearing Walk of FAME T-shirts and equipped with information cards—will walk at an array of popular destinations, including shopping malls, the perimeter of Disneyland and high profile college campuses.

    The registration fee for the Walk of Fame is $35 which includes a pack with a t-shirt, information cards and more. Proceeds go to the NFA.

    If you wish to register, to set up your own team walk or to take part in the virtual walk please visit the NFA’s Walk of Fame page

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