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CROSS POSTED from http://chronicartists.wordpress.com/2010/04/14/second-life-exhibition-of-mecfs-artists-work/

I have been contacted by Kirsty Best, the director of a Centre for ME/CFS in the virtual world Second Life http://www.mecfscentre.org

This post is re-written from the information Kirsty provided in her email to me.

The Second Life Centre for ME/CFS are holding a week of events in the Centre for the week surrounding ME/CFS Awareness Day. One suggestion our members came up with was to exhibit artwork (in the form of paintings, photos, poems, etc) that captures the experience of ME/CFS.

Would any artists be interested in having any creative works featuring the experience of ME/CFS included in the exhibition?

All you need to do is contact Kirsty and provide digital files. Attribution and contact details would be included in the exhibition.

Hopefully the exhibition would become a permanent feature of the Centre and this will help generate a greater understanding of the experience of ME/CFS, as well as providing publicity for artists with ME/CFS whose work is featured.

Here’s wishing everyone all involved every success with the exhibition.

To contact Kirsty email K.Best [at] murdoch.edu.au

“The ME/CFS Centre in Second Life is open to anyone with ME/CFS, and their friends and family. We hold meetings in-world on Mondays at 6pm Pacific time, and Thursdays at 3pm Pacific time (11pm in the UK). If you have any interest in Second Life, please drop by. We mostly have members from North America and Australia, but are starting to be known to people in the UK, so I would be very happy to set up another time more convenient. I also encourage people to use our rooms/ gardens to hold events. You may also be interested in joining our mailing list.”
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The Waterloo Wellington ME Association (WWMEA) is offering a free lecture focused on natural therapies in ME on 26 May 2009.

The WWMEA operates in Southwestern Ontario within Wellington County and the Region of Waterloo serving cities such as Cambridge, Guelph, Kitchener and Waterloo (KW).

image by road fun on flickr

image by road fun on flickr

WWMEA Free Public Lecture
 Tuesday May 26, 2009
 7 p.m.

Dr. Michael Reid
&
Dr. Som Thammasouk

at the Adult Recreation Centre, Room 3, 185 King St. S. (at Allen St.)
(beside The Brick Brewery), Waterloo, Ontario, (view a map)

 Health Essentials for People Living with M.E.

 Join Michael Reid & Som Thammasouk, Naturopathic Doctors, for a discussion on natural therapies and M.E.  This information is vital to individuals looking to optimize their health.

This seminar will cover:

  • Testing for CFS/ME to determine the root cause of your symptoms
  • Effective treatments for CFS/ME and most recent advancements in treating CFS/ME with complementary medicine
  • Discussion on Mind-Body Medicine

More details on the WWMEA site

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image by ccgd on flickr

image by ccgd on flickr

The Richmond and Kingston ME Group will be holding an information stall in Richmond on 23rd May 2009 as part of ME Awareness Month.

Richmond and Kingston ME Group will be out in force in Richmond manning the Group’s information stall.

This year they are focusing the international event on the severely affected people with Myalgic Encephalomyelitis (M.E.).

We will be near to the flower kiosk (and the seating!) in Lower George Street on Saturday May 23rd from 10am to 4pm.

 To help out please contact the Group skip812-rkmegroup@yahoo.co.uk

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The Reading Area ME Support Group are seeking volunteers to help at aDebenhams promotion day in Slough during M.E. Week.

There will be an information stand along with fundraising for Action for ME.

image by ArtemFinland on flickr

image by ArtemFinland on flickr

Debenhams will be displaying Action for M.E. collection tins on all their tills and be selling Action for M.E.. promotional products. Alongside this there will be local press advertisements and a radio competition on Time 106.6 and an Action for M.E. display inside the shopping centre.

All this will enable us to raise more funds, and increase awareness of both us as a charity and also for the illness as a whole.

We are asking if you could please help out at this event – either on the stall, or to collect at the door. Collections will occur 13th-16th May and a presence in the shopping centre will be also for these dates. We will need at least 6 people to be present at each time (2 people for each door, plus 2 people at the stand). (Timings TBC). Chairs will be available so that you can sit down.

If any of you at all could please help with this event, it would be very much appreciated so that we can make this fundraising and awareness activity, a success.

Please could any one who would like to help out please contact Karen sloughmegroup@yahoo.co.uk

You will need to be present between 11am-3pm.

Read more on their blog post

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image by refracted moments on flickr

image by refracted moments on flickr

A coffee morning is being held in Peterborough (UK) for ME Awareness Week on 16th May 2009.

Saturday, May 16 2009

10am-12oon

18 Nursery Gardens, Whittlesey, Peterborough PE7 1TE

Peterborough ME Support Group coffee morning for ME Awareness Week, at the home of Marian and John Dunham.

Source ME Association calendar

We don’t have any other contact details for this event and at the time of writing this blog post the Peterborough ME Support Group web site is not available either at www.peterboroughme.fsnet.co.uk or www.peterboroughme.co.uk

On their listing amongst other regional groups on the ME Research web site they say

We offer support to those affected by these illnesses and aim to gather information for those interested in this area for personal or professional reasons. We provide advocacy and home visits where possible, and we also work closely with health authorities regarding policy and services for and awareness of ME.

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An awareness and fundraising walk is being held on May 23 2009 by Patient Alliance for Neuroendocrineimmune Disorders Organization for Research & Advocacy or P.A.N.D.O.R.A.

Their motto “We were built on Hope. Strong on Advocacy. Finding a Cure through Research.”

walkathonwebsquare03232009Saturday, May 23, 2009, 7:30 AM
CB Smith Park
900 N. Flamingo Rd.
Pembroke Pines, FL 33028

Check -in
: 7:30 to 8:30 am
Walk begins: 9:00 am sharp

Click here to register

Walk with P.A.N.D.O.R.A to benefit children, men and women stricken with Neuroendocrineimmune Disorders such as: chronic fatigue syndrome/ME (CFS/ME), fibromyalgia (FM), Gulf War illnesses (GWI), multiple chemical sensitivities (MCS) or environmental illnesses (EI) and chronic Lyme disease (CLD).

Your participation supports research that can lead to scientific breakthroughs, physician training, scholarships for the chronically ill, quality of life outreach programs and advocacy initiatives.

There is a 5k and a 1 mile walk on the day and the registration fee includes lunch. This fundraising event will go towards PANDORA‘s key missions.

P.A.N.D.O.R.A. Inc. is founded on the following principles:
To be one strong voice for many© . . .

  • Creating and raising awareness
  • Advocating for quality of life Issues
  • Providing support and educational resources
  • Establishing partnerships in our worldwide community
  • Supporting scientific research
  • Encouraging creation of empowerment groups
  • Organizing educational conferences
  •  

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    ME Awareness Week will see the launch of the Scottish Good Practice Statement on ME/CFS

    Thursday, May 14, 6-7.30pm

    Scottish Parliament, Committee Room 2

    Launch of the Scottish Good Practice Statement on ME/CFS.This is a document designed for use by General Practitioners to help them with the management of the care of people with ME/CFS. The document has been produced by Dr Gregor Purdie following wide consultation.

    Any questions about this statement should be directed to Hazel Dawson at Action for ME. The event is being hosted by Andy Kerr MSP, convenor of the Cross Party Group on ME in the Scottish Parliament. If you wish to attend, please contact Hazel Dawson hazel.dawson@afme.org.uk

    Source ME Association Calendar

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