Archive for the ‘canada’ Category

Here’s a new way to be a ME/CFS activist and go beyond raising awareness. The ME/CFS Worldwide Patient Alliance is

“a group of ME/CFS patient advocates who think now is the time for a change. We hope to create this change through an effective, cutting-edge advertisement campaign, specifically to address what needs to be done to improve the quality of life of individuals with CFS, also known as Myalgic Encephalomyelitis (ME). This will be the patients’ voice. It will be our message.”

“”Our campaign aims to highlight the need for more biomedical research, increased public awareness, superior education for physicians and other health professionals involved in our care, and the need for a new name, one that shows the true severity of the illness and not just a single symptom, present in a multitude of other illnesses.”

With support from individuals and organisations such as

One of their first actions has been to place a ME/CFS advertisement in the Washington Post

“Time for the US and UK governments to take the following actions:

  • Provide more funding for biomedical ME/CFS research;
  • Develop a national research and clinical network, as recommended by the federal Chronic Fatigue Syndrome Advisory Committee;
  • Provide funding for XMRV/MLV clinical research in order to sustain momentum;
  • Protect the blood supply and explicitly prevent ME/CFS patients from donating blood;
  • Adopt the Canadian Consensus Criteria for diagnosis and research of ME/CFS;
  • Bring the Centers for Disease Control website in line with the recommendations of leading researchers and practicing physicians in the field of ME/CFS.

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The 12th May is International ME/CFS and Fibromyalgia Awareness Day. During the month of May bloggers are joining together to help raise awareness and on this blog I’m collating a central list of all their posts.

Their approaches and subjects may vary but the one thing they have in common is wanting to get a message to you.

We have some wonderful posts for you to read …


During May 2010 new blog posts will be added here in chronological order:


This is a copy of the lists on the Participants page

See Archive for Participants 2008-2009

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There are lots of simple things you can do to raise awareness of ME/CFS this May.

Take and share a photograph that represents something about ME/CFS. Perhaps of yourself, your medication/suppliments, what you can see from your bed or something that represents a particular symptom.

Share your photo with friends and family, on your blog, on social networking sites like Facebook, MySpace or Twitter (using Twitpic, Moby or a similar service).

If you use a photo sharing site like Flickr considering adding your photo to different groups to raise awareness. 

For example the view from your window could be added to local groups, groups about city or garden views, self portraits, windows or even a group for the type of camera you used.  Try think ing beyond chronic illness and health groups to try and reach people who may have no experience or knowledge of your condition.

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The Waterloo Wellington ME Association (WWMEA) is offering a free lecture focused on natural therapies in ME on 26 May 2009.

The WWMEA operates in Southwestern Ontario within Wellington County and the Region of Waterloo serving cities such as Cambridge, Guelph, Kitchener and Waterloo (KW).

image by road fun on flickr

image by road fun on flickr

WWMEA Free Public Lecture
 Tuesday May 26, 2009
 7 p.m.

Dr. Michael Reid
Dr. Som Thammasouk

at the Adult Recreation Centre, Room 3, 185 King St. S. (at Allen St.)
(beside The Brick Brewery), Waterloo, Ontario, (view a map)

 Health Essentials for People Living with M.E.

 Join Michael Reid & Som Thammasouk, Naturopathic Doctors, for a discussion on natural therapies and M.E.  This information is vital to individuals looking to optimize their health.

This seminar will cover:

  • Testing for CFS/ME to determine the root cause of your symptoms
  • Effective treatments for CFS/ME and most recent advancements in treating CFS/ME with complementary medicine
  • Discussion on Mind-Body Medicine

More details on the WWMEA site

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