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“It may sound strange…, but longer I live with this condition, more I get confused. I assume it is because I see more complicated facts of the condition.”

Rachel from Blue Coffee Mug offers her thoughts on ME/CFS Awareness Day

“Despite ME/CFS is biomedical condition, majority of medical practitioners do not want to treat it, because of the complexity and it is time-consuming to understand/treat. On top of that, they do not have  relevant information about the condition.

Governments hardly allocate research fund for ME/CFS. Without biomedical research into ME/CFS, we cannot have effective treatment. Some of biomedical researches into ME/CFS are on hold due to lack of funding… And a very little fund is continuingly wasted on psychological researches, which doesn’t give us any treatment. So far, the breakthrough findings about ME/CFS were funded by donation and/or private funding.

Despite of the magnitude of suffering, patients are left without treatment and/or support. Often we educate each other about ME/CFS and possible treatments.”

Read the full post Thoughts on ME/CFS Awareness Day 2010

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The 12th May is International ME/CFS and Fibromyalgia Awareness Day. During the month of May bloggers are joining together to help raise awareness and on this blog I’m collating a central list of all their posts.

Their approaches and subjects may vary but the one thing they have in common is wanting to get a message to you.

We have some wonderful posts for you to read …

BLOG POSTS FOR 2010 ME/CFS AWARENESS

During May 2010 new blog posts will be added here in chronological order:

PARTICIPANTS 2010

This is a copy of the lists on the Participants page

See Archive for Participants 2008-2009

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There are lots of simple things you can do to raise awareness of ME/CFS this May.

Take and share a photograph that represents something about ME/CFS. Perhaps of yourself, your medication/suppliments, what you can see from your bed or something that represents a particular symptom.

Share your photo with friends and family, on your blog, on social networking sites like Facebook, MySpace or Twitter (using Twitpic, Moby or a similar service).

If you use a photo sharing site like Flickr considering adding your photo to different groups to raise awareness. 

For example the view from your window could be added to local groups, groups about city or garden views, self portraits, windows or even a group for the type of camera you used.  Try think ing beyond chronic illness and health groups to try and reach people who may have no experience or knowledge of your condition.

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If you are blogging for ME/CFS Awareness this May we would like to add you to our list of Participants for 2009. You can see an up to date list of bloggers and their posts there.

mecfs ribbon sqor400We welcome bloggers for ME, CFS, CFIDS, FMS, FM, MCS, PVFS, Gulf War Syndrome and related conditions.

Also on this blog you will find Badges you can use on your blog, web site or for your profile picture on sites like Facebook, MySpace and Twitter.

Along with a list of ideas and links for What You Can Do to raise awareness of ME/CFS.

Read About ME/CFS and what’s behind this blog or read/search through the blog posts here to find activities and events happening in your local region and internationally.

Blog Posts for ME/CFS Awareness 2009

New posts will regularly be added to the end of the list:

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image by pshab on flickr

image by pshab on flickr

Facebook users can indicate their attendance of M.E. Awareness week through a scheduled event on the site.

You can sign up to the event here

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A multi faith worldwide event focusing on prayer and meditation will take place on 12 May 2009 to mark International ME, CFS, CFIDS, FMS Awareness Day.

The event is in it’s second year and holds the affectionate nickname Time2Link

This inter-faith event welcomes participants from all religious and spiritual traditions, philosophers, free-thinkers and non-believers.

It is a time to set aside our differences, in the knowledge that we all share similar symptoms with our health conditions and wish each other well.

Just by linking-in, your thoughts and prayers will add to the input from others connecting to the network on this day and together we will generate something wonderful that radiates out into the world…like a lighthouse, that beams out a light signal and helps to guide each individual on their way.

1807419_low-world-image

Time2Link

All are welcome to join in and support those with ME, CFS, CFIDS, Post Viral Fatigue Syndrome, Fibromyalgia Syndrome and related conditions such as Multiple Chemical Sensitivity or Chemical Injury and Myofascial Pain Syndrome.

You are invited to make a prayer, meditation, visualisation or even just a wish on 12 May between 12 noon and 12.30pm local time.

Read more about this event at the Time2Link web site

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News of a CFS/ME/FM event in Noosaville, Australia from the Sunshine Coast Community Information blog:

Awareness Week is celebrated throughout Australia during the week of 10th – 16th May 2009 and International Awareness Day is on the 12th May and is recognised throughout the world.

picnic3-remdiatethis-flickr

image by remiatethis on flickr

North Coast CFS/FM/ME is celebrating the occasion on the 13th May with a sausage sizzle in the Boathouse Park.

All who suffer from this disease are welcome and information on the subject of CFS/FM/ME will be available.

WHERE: Boathouse Resvoire Park, Gympie Terrace, Noosaville
WHEN: 13th May, 2009
TIME: 11.00am – 2.30pm
COST: $2.00 for sausage sizzle

For more information please contact Sandy Eastman – (07) 5471 0039

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