“It may sound strange…, but longer I live with this condition, more I get confused. I assume it is because I see more complicated facts of the condition.”
Rachel from Blue Coffee Mug offers her thoughts on ME/CFS Awareness Day
“Despite ME/CFS is biomedical condition, majority of medical practitioners do not want to treat it, because of the complexity and it is time-consuming to understand/treat. On top of that, they do not have relevant information about the condition.
Governments hardly allocate research fund for ME/CFS. Without biomedical research into ME/CFS, we cannot have effective treatment. Some of biomedical researches into ME/CFS are on hold due to lack of funding… And a very little fund is continuingly wasted on psychological researches, which doesn’t give us any treatment. So far, the breakthrough findings about ME/CFS were funded by donation and/or private funding.
Despite of the magnitude of suffering, patients are left without treatment and/or support. Often we educate each other about ME/CFS and possible treatments.”
Read the full post Thoughts on ME/CFS Awareness Day 2010