Maggie at Liverpool Leftovers has been reflecting on those with ME who face the loss of their personal lives, something that isn’t often written about.
“But I know of so many people with this DD (Damned Disease) who live alone, who cannot get out to meet with potential partners and friends, who have to face the possibility of never sharing their lives with anyone.
Meanwhile we are all left with clinics run on psycho-social theories that do not address the effects of this illness even in psycho-social terms.
I delight to have the joy of twin grandsons, but I despair that many of my fellow patients will be deprived of this joy in their lives.
It’s time the MRC and NICE woke up to the fact that around 250,000 people in the UK are not only lost to the work place, but also are losing out on one of the most important aspects of their lives – their family lives.”
From International ME Awareness Day 2010 – Maggie, Liverpool Leftovers