Participants

Please help us compile a list of how individuals are raising awareness online.

Let us know if you will or have been blogging, posting videos, podcasts, vlogs, photographs, bookmark sharing or status updates for ME/CFS Awareness.

Please link back to this blog once you have posted for ME/CFS Awareness and also leave us a direct link to your awareness post(s) so we put this on the list.

Participants 2009

Angel:
blog http://fibromyalgia-journal.blogspot.com

Antoinette Christie:
blog http://familyfights4me.blogspot.com

Ashy:
blog http://ashy00.wordpress.com

BlueRibbons4ME:
twitter @BlueRibbons4ME
web www.blueribboncampaignforme.org

Bryony:
twitter @BryonyEvans

Cellgoldrush:
twitter @cellgoldrush

CFS Warrior / Terri:
blog http://cfswarrior.blogspot.com

Christine:
blog http://xinedaily.blogspot.com

Cinderkeys:
blog http://cinderbridge.blogspot.com

Cusp:
blog http://lombredemonombre.blogspot.com

DiamonDie:
blog http://diamondie.deviantart.com
twitter @DiamonDie

Elettaria:
blog http://elettaria.livejournal.com

Freesvea:
blog http://freesvea.wordpress.com

George / uhadtobethere.co.uk
blog / directory http://www.uhad2bthere.co.uk

Green Words Growing:
blog http://www.greenwordsgrowing.com
twitter @greenwords

GrovesMedia:
blog http://grovesmedia.wordpress.com

Jessie:
blog http://henryralph.blogspot.com

Karmen:
blog http://www.karnylife.blogspot.com
blog http://moonwillowstudio.blogspot.com

Killandra:
twitter @killandra

Kim:
twitter @kymalvaro

Laura:
blog www.caringbridge.org/visit/lauradunks
twitter @redtoffee

Nina:
blog http://ninacolors.wordpress.com

Maggie / Liverpool Leftovers:
blog http://liverpool-leftovers.blogspot.com

Michelle:
blog http://behindthesurface.blogspot.com

Miss Milki:
blog http://missmilki.blogspot.com

NMJ:
blog http://velo-gubbed-legs.blogspot.com

Paul Allen:
blog http://paulusthebrit.wordpress.com

Phoenix:
blog http://spiritofphoenix.livejournal.com

RachelCreative:
blog http://rachelcreative.wordpress.com
blog http://chronicallyme.wordpress.com
twitter @rachelcreative

Rachel M / Blue Coffee Mug:
blog http://bluecoffeemug.wordpress.com

Reading The Signs:
blog www.readingthesigns.blogspot.com

Renee:
blog http://lymeliving.blogspot.com

Runefox:
blog http://freya-bean.livejournal.com
twitter @Runefox

Sandy/Fighting Fatigue:
ME/CFS Awareness: What You Can Do
blog www.fightingfatigue.org

Shelli:
Chronic Fatigue Syndrome Awareness
ME/CFS Awareness
blog http://livingthecfslife.blogspot.com

Sue Jackson:
web site www.suzanjackson.com
blog www.livewithcfs.blogspot.com

Tea / Jo:
flickr/photos http://www.flickr.com/photos/freshbrew/tags/mecfs09/

Tigerduck:
blog http://jen-mecfs.blogspot.com

Treya:
blog

Blog Posts for ME/CFS Awareness 2009

New posts will regularly be added to the end of the list:

Ashy: Blogging for ME Awareness Day 2009!
Nina: ME/CFS Awareness Day
Rachel M: ME/CFS Awareness Day
Sandy: ME/CFS Awareness: What You Can Do
Shelli: Chronic Fatigue Syndrome Awareness
Shelli: ME/CFS Awareness
Tea: #1 M.E./CFS Awareness : May 2009
Tea: #2 M.E./CFS Awareness : May 2009
GrovesMedia: ME and My Bike
Kym: A Day in the Life of Kym – photoessay
Greenwords: M.E. Awareness Week 2009
Reading the Signs: Sick Potato
Behind the Surface: Come to Bed With ME
RachelCreative: My ME Life
ChronicallyMe: What Awareness for ME means to Me
Diamondie: CFS/ME awareness day 2009
Antoinette Christie: ME Awareness Month
Cusp: Blogging for ME Awareness Day: Just Keeping in Touch
NMJ: ME Awareness Day
Shelli/Living the CFS Life: Kicking Off ME/CFS Awareness Week!
Tea: #3 M.E./CFS Awareness : May 2009
Jessie: Head, Shoulders, Knees and Toes
Cinderkeys: ME/CFS Awareness Day 2009
Elettaria: International ME/CFS Awareness Day
Phoenix: ME Awareness Week
Maggie: Silver Surfers
Renee: ME/CFS Awareness Day
CFS Warrior: International ME/CFS Awareness Day Today
Laura: See 12 May 2009 Journal Entry
Cinderkeys: Awareness
Blue Ribbon Campaign: ME/CFS Awareness Day- ME/CFS is not a mental illness
Paul Allen: ME/CFS Support
Miss Milki: Better Late Than Never
Runefox: ME/CFS International Awareness Day
Shelli/Living the CFS Life: ME/CFS Awareness: How CFS Affects Me
Sue Jackson: International ME/CFS Awareness Day
Tea: Photo #4 M.E./CFS Awareness : May 2009
Fighting Fatigue: ME/CFS & Fibromyalgia International Awareness Day – How It All Began
Karmen: My Story: Living with Chronic Fatigue Syndrome & Fibromyalgia (cross-posted)
Tigerduck: ME & CF(ID)S Awareness Day
Rachel M: Thoughts on Awareness Week 2009
Freesvea: Understand me … on a bad day
Angel: UK(Wales) Research on Chronic Fatigue
Angel: May 12th is Fibromyalgia Awareness Day

78 Comments »

78 Responses

on April 1, 2009 at 8:46 am | Reply ME/CFS Awareness May2009 « RachelCreative

[...] As well as blogging I’ll be looking at other onine activities by individuals. So whether you blog, use your status updates on Facebook/Twitter/MySpace/etc, post pictures, photos or videos – drop by ME Aware blog and ask to be added to the participants list. [...]
- on April 7, 2009 at 2:06 pm | Reply Treya
  
  Hey there,
  
  It’s great work you’re doing. I’ve just recently started my own blog, trying to promote awareness of ME/CFS. I have put the badge on my blog page.
  
  Take care!
  - on April 7, 2009 at 5:15 pm | Reply rachelcreative
    
    Hello Treya
    
    Thanks very much and thanks for the badge/link to the site.
    
    Hope you’re able to do something on your blog for ME/CFS Awareness in May. I’ve added your blog to out list.
    
    Rachel
on April 1, 2009 at 9:42 am | Reply ME Aware Blog for ME/CFS Awareness 2009 « ChronicallyMe

[...] As well as blogging I’ll be looking at other onine activities by individuals. So whether you blog, use your status updates on Facebook/Twitter/MySpace/etc, post pictures, photos or videos – drop by ME Aware blog and ask to be added to the participants list. [...]
on April 1, 2009 at 10:34 pm | Reply Sue

This is a great idea! I always try to post some awareness stuff in May to commemorate Awareness Day on my blog. Count me in!

Sue
on April 2, 2009 at 8:14 am | Reply rachelcreative

Thanks Sue. I’ve added your web site and blog to the list.
on April 2, 2009 at 4:41 pm | Reply Rachel M

I would like to try again. Please count me in. ;-)
- on May 18, 2009 at 1:38 pm | Reply Rachel M
  
  Hi Rachel
  I’ve finally posted the entry. I know it’s late, but I hope it’s better to be late than never.
  
  http://bluecoffeemug.wordpress.com/2009/05/18/thoughts-on-awareness-week-2009/
  - on May 18, 2009 at 6:36 pm | Reply rachelcreative
    
    There’s no deadline. Thanks for your post.
on April 2, 2009 at 8:53 pm | Reply rachelcreative

Hi Rachel. I’ve added you to the list. There’s no pressure! We know how it is.
on April 3, 2009 at 4:53 am | Reply Michelle

I’ll be too. :-)
- on April 3, 2009 at 8:41 am | Reply rachelcreative
  
  Thanks Michelle. I’ve added you to the list.
on April 6, 2009 at 8:40 am | Reply Maija Haavisto

I will post a blog (and an article/interview about a CFS/ME sufferer) on my DeviantART account as I’ve been doing since 2005. http://diamondie.deviantart.com I will also be posting on my Twitter account http://www.twitter.com/DiamonDie

Might come up with other things, too.
- on April 6, 2009 at 8:49 am | Reply rachelcreative
  
  Thanks for stopping by Maiji.
  
  I’ll add these to the list. Great work!
on April 6, 2009 at 6:19 pm | Reply Shelli

Hi, Rachel — am I doing something wrong? I’d like to be added to the participants list. Is there something I need to do to qualify? I’ve commented twice already — am I messing something up with the computer? Please let me know what I can do, because I think what you are doing is honorable, and I would like to be a part of it.

Thanks!
Shelli
- on April 7, 2009 at 8:03 am | Reply rachelcreative
  
  Hi Shelli – Seems this was the only comment to make it through but that’s ok. You’re here now :o) I’ll add you to the list. Thanks very much.
on April 8, 2009 at 11:02 pm | Reply greenwords

Hello there Rachel, I’ll be blogging and tweeting and anything else I can muster up!
- on April 9, 2009 at 12:03 pm | Reply rachelcreative
  
  Hello again and thanks very much! I’ve added your blog and twitter address to the list.
on April 14, 2009 at 6:02 am | Reply Maggie

Hi Rachel, please add me to the list too – not sure what I’ll do, not had much time for blogging recently, but hopefully will come up with something!

Best wishes from Liverpool
- on April 14, 2009 at 2:43 pm | Reply rachelcreative
  
  Hi Maggie and thanks. I’ve added your blog to our list.
on April 15, 2009 at 8:32 pm | Reply Antoinette Christie

Hi Rachel, add me to the list to.

Please sponsor me in taking part in the Belfast Marathon in aid of ME Research, go to http://www.justgiving.com/antoinette...

Best wishes from Belfast

Antoinette x
- on April 15, 2009 at 9:21 pm | Reply rachelcreative
  
  Hi Antoinette
  
  Thanks. I’ve added you to our list.
  
  Best of luck with the Belfast Marathon. Your justgiving link you left doesn’t work.
on April 20, 2009 at 9:25 pm | Reply Shelli

Hi, Rachel — I’ve just added an ME/CFS Awareness section to my website, Chronic Fatigue Community. Can you add this link to my website to my participant’s information?

Website: http://www.chronic-fatigue-community.com/blog

Thank you! Shelli
- on April 21, 2009 at 7:17 am | Reply rachelcreative
  
  Done! Thanks.
on April 28, 2009 at 10:37 am | Reply perpetualspiral

Hey this is great. I will be tweeting and recruiting others to the Blue Ribbon Campaign through facebook etc. I’ve also decided to make some sort of blue ribbon craft to wear/post in May to show my support. I’d like to get more involved somehow, so let me know what is needed (besides money – I’ve none of that!) :)
- on April 28, 2009 at 2:30 pm | Reply rachelcreative
  
  Thanks!
on April 28, 2009 at 7:16 pm | Reply nmj

My autobiographical novel about ME was published last year. My blog is about many things, ME is often mentioned.
- on April 29, 2009 at 12:39 pm | Reply rachelcreative
  
  I’ve added your blog to the list and hope you’re able to blog for ME Awareness this May.
on April 29, 2009 at 11:38 am | Reply Runefox

Hi Rachel

(Tried to post a few times, hoping this one gets through…)

I’ll be trying to post on my journal http://freya-bean.livejournal.com, on Facebook (Nikki Farquhar) and tweeting (@Runefox) as much as I can (without being spammy!)

I’ve contacted EdMesh to see if I can get involved as a volunteer here in Edinburgh.

I’ll try and think of other ways… perhaps I can try and put my visual journal online too.

Please let me know if there’s anything else I can do to help!
- on April 29, 2009 at 12:38 pm | Reply rachelcreative
  
  You will be busy! Thanks very much. Added you to the list.
on April 29, 2009 at 3:07 pm | Reply Andrea Martell

Central site for the Blue Ribbon Campaign for ME/CFS. Will eventually be collecting stories, and links there as well. :) Of course, we have your ribbons to thank for it. :)

Link back to this site is already there.
- on April 29, 2009 at 4:50 pm | Reply rachelcreative
  
  Thanks Andrea.
  
  Am really impressed with all your hard work with the Blue Ribbon Campaign.
  
  Would you like me to add your twitter to the list of participants?
  - on April 29, 2009 at 4:53 pm | Reply Andrea Martell
    
    Oh yes, is it possible to add Killandra and BlueRibbons4ME for twitter, as they’re sort of in transition right now.
    - on April 29, 2009 at 5:29 pm | Reply rachelcreative
      
      Yep no problem. Thanks again!
on April 29, 2009 at 4:53 pm | Reply Andrea Martell

Thanks so much btw!! It was your ribbon that inspired me.
on May 1, 2009 at 1:50 am | Reply Sandy/Fighting Fatigue

Hi Rachel – Here’s the link to my post on raising awareness. I actually have a few, but this is probably the best! Keep up the great job raising awareness!

http://www.fightingfatigue.org/?p=5766
- on May 2, 2009 at 9:10 am | Reply rachelcreative
  
  Thanks Sandy. Great post with great advice on what people can do for ME/CFS Awareness. Thanks!
  
  I’ve added it to the list and also the resources bit.
on May 2, 2009 at 4:40 am | Reply Terri

Hi Rachel-

What a great idea! I’d love to participate if its not too late!

Terri
- on May 2, 2009 at 9:12 am | Reply rachelcreative
  
  Great thanks Terri. Added you to the list and no it’s not too late.
  
  You can blog for
  Awareness Day 12 May
  or Awareness Week 11-17 May
  or Awareness Month during May
on May 5, 2009 at 10:03 am | Reply cusp

Yep…I’ll be there. Count me in too
- on May 6, 2009 at 8:33 am | Reply rachelcreative
  
  Thank you Cusp. You’re now on the list too.
on May 7, 2009 at 9:53 pm | Reply tea

Hi Rachel,

Please count me in too! Flickring is easier than blogging at the moment so I’ll post up my contributions at http://www.flickr.com/photos/freshbrew/tags/mecfs09/ :)

Jo
- on May 8, 2009 at 8:05 am | Reply rachelcreative
  
  Brilliant – thanks Tea. I love the photo! Thanks again.
on May 9, 2009 at 11:44 am | Reply Laura

I have been spreading awareness on my new caringbridge site and journal http://www.caringbridge.org/visit/lauradunks, on twitter http://twitter.com/redtoffee on my facebook statuses and profile http://www.facebook.com/profile.php?id=727885441&ref=profile on all the facebook causes such as Blue RIbbon Campaign cause and campaign for M.E. which I help moderate also been spreading awareness on AYME and Foggy friends and on the Blue RIbbon Campaign lj community which i created and on other communties and my lj but that is friends only.

Oh by the way the link to your meaware blog is on my caringbridge site just to let you know.

Hope you are ok!

Laura
~X~
- on May 10, 2009 at 9:36 am | Reply rachelcreative
  
  Hi Laura
  
  Thanks for the links. I’ve added your blog and twitter to the participants list and blogroll. You certainly are very busy with all your work for ME/CFS! Thanks again.
on May 9, 2009 at 1:34 pm | Reply Reading the Signs

I will be posting something for M.E. Awareness Day too, Rachel – thanks for all your work and dedication.
- on May 10, 2009 at 9:36 am | Reply rachelcreative
  
  Thanks Signs
  
  I look forward to reading your post. I’ve added you to the list of 2009 participants. Thanks.
on May 12, 2009 at 12:26 am | Reply Christine

Hi Rachel!

I’m planning to put a post together for tomorrow. It’s been a long time since I updated my CFIDS blog…I miss being more involved online.

Hope all’s well in your corner of the world.

Cheers,

Christine
- on May 12, 2009 at 9:38 am | Reply rachelcreative
  
  Thanks Christine. I’ve added your blog to the list and look forward to seeing your post.
on May 12, 2009 at 8:30 am | Reply kym

Hi Rachel,

I created a photo essay of a day in my life with ME/CFS
http://tinyurl.com/may12photo
- on May 12, 2009 at 9:46 am | Reply rachelcreative
  
  Hi Kym
  
  Your photoessay is excellent. Thanks so much for putting in the work to put it together. Thanks! I’ve added it to the list and hope people will go check it out.
on May 12, 2009 at 12:38 pm | Reply Bryony

am posting the names of people in my circle of friends who are or have been affected by ME & CFS. Maybe there are more who I don’t know about. Using Facebook and Twitter to link back to today’s awareness days blogs. Requested to join in by GrovesMedia as part of his bike ride ’sponsorship’

Cheers

Bryony
- on May 12, 2009 at 1:20 pm | Reply rachelcreative
  
  Many thanks Bryony for helping to spread the word. Much appreciated.
on May 12, 2009 at 7:42 pm | Reply Elettaria

Hi everyone, I’ve put up a blog post at http://elettaria.livejournal.com/79009.html and may write a more personal post later in the week. Great to see this happening!
- on May 12, 2009 at 9:07 pm | Reply rachelcreative
  
  Great and thanks so much for letting us know! Added it to the list – thanks.
on May 12, 2009 at 10:34 pm | Reply Phoenix

I’ve written about ME on my LiveJournal.
http://spiritofphoenix.livejournal.com/71179.html?

It’s great to see everything listed in one place!
- on May 13, 2009 at 11:53 am | Reply rachelcreative
  
  Thanks for letting us know about your blog post Phoenix. You’ve been added to the list. Thanks for your support!
on May 12, 2009 at 10:57 pm | Reply Maggie

Hi Rachel,

Here’s my post:

http://liverpool-leftovers.blogspot.com/2009/05/silver-sufferers.html

Am too knackered to add a link back to you just now, can’t figure how to do it, working across 2 laptops is just too complicated (have a problem with mine, so am using John’s as well as mine urk)

Best wishes from Bwlchtocyn!

Maggie
- on May 13, 2009 at 11:56 am | Reply rachelcreative
  
  Hi Maggie. Your post has been added to the list. Thanks so much for letting me know the link. I’ll try and pop over and have a read at some point! Thanks again.
on May 12, 2009 at 11:26 pm | Reply Renee

Hi ‘
I have written a post on ME/CFS Awareness at my blog.
http://www.lymeliving.blogspot.com.
- on May 13, 2009 at 12:00 pm | Reply rachelcreative
  
  Great thanks Renee! I’ve added your blog and post to the list here. Thanks again.
on May 13, 2009 at 3:08 am | Reply Joe Burton

twitter @cellgoldrush
- on May 13, 2009 at 12:10 pm | Reply rachelcreative
  
  Thanks for tweeting for ME/CFS Awareness!
on May 13, 2009 at 7:11 am | Reply Andrea Martell

Posted a blog entry for today. http://blog.blueribboncampaignforme.org/2009/05/13/mecfs-awareness-day–mecfs-is-not-a-mental-illness.aspx

Sorry for taking so long to get it live.
- on May 13, 2009 at 12:19 pm | Reply rachelcreative
  
  Hi Andrea. Thanks for the link to your Blue Ribbon Campaign blog post. I’ve added it to the list we have here. I think you have been very busy indeed with the BLue Ribbon Campaign. I’ve seen lots of blue ribbons on profile pictures of social media sites and links to your campaign site. Well done you.
  - on May 13, 2009 at 12:57 pm | Reply Andrea Martell
    
    Thank you. :) I have been very busy, I pour most of my energy into it. Though it is the effort of many other people who keep it going.
    Makes me smile every time I see one of your ribbons on a website I’ve never heard of, or belonging to a person I haven’t met yet.
    For me it all started because I put a blue ribbon up in my facebook profile to help raise money and awareness on my birthday.
    It was your ribbon. Meeting on twitter deepened the connection to you and the ribbon.
    So really, it all starts with your ribbons. :)
on May 13, 2009 at 8:57 am | Reply Paul Allen

Posted a blog today re being a supporter of a family member (my wife) who has had ME for 11 Years. here is the link. http://paulusthebrit.wordpress.com/2009/05/13/mecfs-support/
- on May 13, 2009 at 12:24 pm | Reply rachelcreative
  
  Paul – thank you so much for your post and for letting us know so we can add it to our list here. Thanks.
on May 13, 2009 at 4:22 pm | Reply missmilki

Hi! I’m a bit late but I wasn’t well enough to blog yesterday! Here it is – http://missmilki.blogspot.com/2009/05/better-late-than-never.html
- on May 13, 2009 at 4:29 pm | Reply rachelcreative
  
  Not too late no! There’s no deadline for raising awareness. Thanks for your post and letting me know the link. Now added to our list here. Thanks again.
on May 13, 2009 at 7:44 pm | Reply Karmen

Hi Rachel,

I wrote my story & stuck it on my Karny Life blog at: http://karnylife.blogspot.com/2009/05/my-story-living-with-chronic-fatigue.html

& then I stuck it on my MoonWillow Art Studio blog too at: http://moonwillowstudio.blogspot.com/2009/05/my-story-living-with-chronic-fatigue.html

I’ve been enjoying your blog & looking at your art. Hope you get a chance to look at mine sometime.

Thanks!
- on May 14, 2009 at 6:07 am | Reply rachelcreative
  
  Hi Karmen. Thanks very much. I enjoyed reading your post. Hoping to get around everyone’s posts soon! Thanks.
on May 21, 2009 at 8:52 am | Reply freesvea

Hi,

I’m blogging for MS/CFS Awareness. Here’s the relevant page:

http://freesvea.wordpress.com/2009/05/21/understand-me-on-a-bad-day/

Thanks,
Svea
- on May 21, 2009 at 8:40 pm | Reply rachelcreative
  
  Hi and thank you so much for sharing your link to your blog post. I’ve added yours to the list here for 2009. Thanks.
on May 27, 2009 at 6:07 pm | Reply Angel

Hi! I found out belatedly that May12th is also CFS Awareness Day. I already knew it was FM’s day. I learned something new! Thanks for having such a neat site. I’m listing a link back to it on my blog.

I blogged for CFS testing and trials here: http://fibromyalgia-journal.blogspot.com/2009/05/ukwales-research-on-chronic-fatigue.html

I blogged for FM awareness here: http://fibromyalgia-journal.blogspot.com/2009/05/may-12th-is-fibromyalgia-awareness-day.html

Yes, I am rather … talkative. I tend to write whole essays on my blog. But it’s therapeutic and keeps me up to date with research which is ongoing.
- on May 27, 2009 at 9:16 pm | Reply rachelcreative
  
  Hi Angel and thanks for your links. I’ve added both your links to out list here. Thanks.
on August 17, 2009 at 10:55 am | Reply billygean

Hi I know this is really late, but I have a blog and blogged me entire experience with ME at http://www.billygean.co.uk/ – Action for ME sponsor me and have linked to me on their facebook page which I’m getting a lot of traffic from.

Hope it helps!

Billygean
on October 18, 2009 at 5:53 pm | Reply poeksie101

I am blogging my experience of ME on here (http://poeksie101.wordpress.com/) so count me in for the 2010 ME Awareness campaign!!

Sam