Video by the CDC (American Centre for Disease Control and Prevention) for awareness about Chronic Fatigue Syndrome/Myalgic Encephalopathy, titled “Missing My Life”.
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The commercial was only 30 seconds long, but it certainly described how I feel. I always feel like “My Life Is Passing Me By”. I feel like I’m trapped in a body that just won’t work!! I spend days at a time in my recliner chair unable to get up and at times not even having the strength to take a shower. It’s been 5 years now. It hits me that my children are now 20 and 16 and I’ve missed so much of their lives (e.g. track meets, chorus concerts, etc.) and I’ll never get that time back. I feel like an inadequate Mother. I don’t have the strength to cook meals, clean the house, iron, etc. I too want my life back. It took several doctors, several years, and numerous expensive tests to figure out what was wrong with me after I came down with a severe case of the flu that just would not go away. In the beginning I would hope for more GOOD DAYS, but now I realize they are far and few between. I keep developing one immune disease after another now, and with every pill and treatment, I never feel better. I pray every day they find a cure, especially when people can’t see how much pain you’re in and the amount of strength it takes just to get out of bed. I’m only 46 and pray for a cure soon, so I can have my life back again.